Max’s family still so thankful for their gift from the Sunshine Fund four years on

The five-year-old received a specialist bed from the charity five years ago and it changed his life.

Max Kaczmar’s family will eternally be grateful for the gift the Sunshine Fund gave them.

The little boy has been hailed as both a mystery and a miracle as he continues to defy the odds despite being born with a huge part of his brain missing.

Mum Rachel was not expecting her baby to survive when a scan showed his huge health complications.

But Max kept fighting.

The energetic five-year-old keeps Rachel and husband Matt, both 33, on their toes and over the moon every day as they thank their lucky stars he is even here at all.

However, Max has many medical complications and has gone through more than most of us ever will in his short life.

When Max was born, it was discovered his oesophagus was not connected to his stomach.

Instead his tiny windpipe was attached to his trachea so, at just six hours old, he needed corrective surgery.

He also had a small hole in his heart, his kidneys were fused and in the wrong place and he was diagnosed with autism on his third birthday.

Max even had to have a shunt fitted to drain the fluid that fills the empty spaces in his head.

Due to his undiagnosed genetic condition, Max has no safety awareness and cannot sleep in a normal bed, but the kind of bed he needed would have cost thousands of pounds.

In 2014, the Sunshine Fund provided Max with a specialist bed following their annual Go Bananas campaign where they help local disabled children get equipment they can’t get by any other means.

The bed allowed the then 21-month-old to sleep in his own room and allow his exhausted parents to be able to take their eyes off him and not worry about him hurting himself.

The secure bed has padded sides and closes up completely in case he hits his head or attempts to climb out.

And four years later, the bed is still a godsend to the Kenton family.

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